Annie!

We did it!   Tech week and show day - always crazy. No two ways about it.  Through some diabetes in there, and it's enough to break a girl!  

Tech week involved practice every night from 5-8, which meant being gone 4:30 - 8:30.  Which meant planning meals and snacks and insulin in a way that would work.  We did it, but mercy, are we glad it's over.

Show day itself was great.  It was a fun production, but not without adventure. Lights went down, and my phone started blowing up.  Literally, as the curtain went up, Hannah's blood sugar went down and we had our first "crash."  Thanks a million times over to the backstage mom who calmly took direction via covert text and helped Hannah.  Like many things on this journey so far, all I could do was laugh....  She also dropped right before the second show, but other than that, the day went smoothly -- much more so than I'd thought it might.

Hannah is having a hard time being away from my house right now...not wanting to go to dads...even with the lure of Grammy and Bumpa.  It's making everyone hurt.  I know it'll resolve over time, but it certainly adds a layer of complexity to the adventure we're on....

211!!!!

Best nighttime blood sugar yet! It would seem nighttime Levemir is working as hoped.

Whoooooooooooop.

What. A. Day.

We've been having high sugars...really, things haven't been "under control" yet. Which is unnerving, exhuasting, scary and overwhelming. But yesterday morning takes the sugar-laden, frosting-covered cake.

Hannah went to band, up at Truman. Calls me at 8...her blood sugar was over 550 -- more than 100 points higher than when we were admitted to the ER. Sigh.

What to do, what to do, what to do. Decided to have her give herself more insulin. Wait in the nurses office at Truman and then ride the band bus back to school. Test her numbers again at 9, 10:30. Thankfully when I talked to the clinic hey confirmed my thinking. That was a confidence builder for sure.

A day full of texts and calls to school nurses and teachers and Hannah. A new insulin protocol. An extremely emotional girl who was sure her bs level would land her back at the hospital.

Blood sugar came down. And of course went low. :). So we practiced what to do when blood sugars are low.

Our new direction with insulin means wonky (wonkier?!?) blood sugars for a few days. Timing couldn't be worse with Hannah's play. But I'm finding diabetes to be a heartless bitch who doesn't much care what else is going on. Ah well. We will cope.

Hannah is scared to go to band. Scared to go to school. Scared to go to play practice. Scared to eat. Here is hoping with move though this particular phase quickly.

Have a great day!!

Katie

School...

We survived with no nurse. We survived with no teacher. We survived a field trip. We survived our first low blood sugar. We survived really high blood sugars. We survived the PE teacher monitoring carb counts and insulin shots. We survived someone bringing cupcakes to school. We survived telling our friends. We survived checking our blood and doing insulin at school.

Not too shabby for the first 4 days.

Recommended...

Several people have recommended this book...

Cheating Destiny: Living with Diabetes.

2am....

It isn't that the two am blood sugar checks are terrible. Honestly, they're the best ones. Hannah is asleep, or sleepy. Even if she wakes, she is delirious and relatively happy. There is no fussing. It is the falling back asleep part that is tough. I have to be awake enough to know what I'm doing. Lights are on. I'm usually waking before my alarm because I'm afraid of overshooting it. My normal wake time is 430-5. If I'm not getting back to sleep until 3, it makes for some wonky sleep. And that's if I'm getting back to sleep. :). Since I'm blogging at 2:44, take a guess at how sleep is working for me :). In theory, this is temporary, though I've talked to several moms who said it was a long time before they could stop doing 2 am. It's one thing to be functioning enought to get through the days at home. I'm more than a bit nervous about what this is going to look like when I return to work.

JDRF

Went to a great session put on my JDRF. It was a lot to take in. I was surprised to listen to the questions of those a year in. It definitely sounds like this remains consuming and doesn't really stabilize for some time. Which is scary to me. I have a hunch that I'm going to renegotiate both my understanding of being tired and my capacity for getting things done.

Hannah was pretty emotional still today. Some of it is rational. Some not. It is really an interesting thing to try to parent through. I'm hoping that at some point, as her sugars "stabilize" that her moods will as well. Just in time for puberty. Ahahahahaha. I should just give up now.